“As a member of the T1D community, I know many are not as fortunate as I am to have the resources necessary to live a healthy and fulfilled life. This is why I am so proud that significant progress has been made to understand T1D’s global impact through the T1D Index. We are calling on government and public health decision makers throughout the world to utilize the tool to identify and implement interventions that can change the trajectory of T1D.”

“It is critical to know the number of people with T1D so that sufficient resources are allocated and advocacy efforts optimized. In this regard, the T1D Index is a truly novel initiative with enormous promise. It builds on the modeling work developed by Life for a Child and the University of Pittsburgh, as well as the work behind the IDF Atlas, a global survey by ISPAD, and various other data sources. Breakthrough T1D’s inputs of a larger vision, advanced statistical methods and new ways of looking at the situation, have led to a robust method of generating information on current and projected future situations concerning T1D at all ages for all countries. The Index will also be able to model the impact of proposed interventions. The open-source nature greatly enhances the usability. Life for a Child is providing extensive technical guidance and support, and will continue to do this as the Index develops.”

“More than 100 years have passed since the first successful use of therapeutic insulin. It shames the world that early diagnosis and access to appropriate standards of care are still not universally achieved. Providing the evidence is key to helping the global diabetes community to raise awareness and demand action to bring about the increased investment in access, treatment, and prevention that is required.

The launch of the Index is timely and welcome. It places an innovative tool in the hands of diabetes advocates everywhere. It will help reframe the argument around access to care for people living with T1D and draw attention to the significant disparities that continue to exist globally.

The International Diabetes Federation (IDF) is delighted to have contributed to the development of the Type 1 Diabetes Index and will support its promotion and further development to make the case for uninterrupted access to affordable insulin, along with the technologies and education that support successful insulin therapy for all people living with T1D.”

“The T1D Index is a powerful resource. It provides the metrics on type 1 diabetes to advocate and drive change with our partners and the community. The index highlights the disparities and needs of those with T1D around the world. Lives are lost, and days lost due to diabetes, its burden of care and its complications. ISPAD, the International Society for Pediatric and Adolescent Diabetes with a global membership of over 1,100 members in 107 countries, has been delighted to work on this project. It has developed and enabled the survey “The Global State of T1D” with Breakthrough T1D and LFAC, contributing to the numbers with diabetes, the numbers undiagnosed and thus lost; and the time lost to type 1 diabetes and its care in our member countries. We look forward to the next phase of action with the T1D Index with our partners.”